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posted by [personal profile] maelorin at 02:11pm on 18/03/2005
centrelink gives the appearance of integration, but in practice there is little evidence of it.

australia's social security system is not a system, but a bundle of vaguely related systems that have a common shop front, and a maze of different rules, procedures, policies, and agencies. apart from having a single shop front, the federal components of the systems display little evidence of coherence, efficiency or effectiveness - at least not for the 'customer'™ or 'client'™. there is some indication that effort has been made for the various organisations involved. but just barely.

centrelink provides a shop front and clearinghouse for ten federal government agencies ... each having their own rules, criteria, application processes and so forth. the people-face is the same people, but the backend is different - appearances are deceptive.

while the federal government is moving to make 'assistance' programs more similar, there is no indication that they are interested in making them more effective (except in terms of budget 'savings').

i am about to attempt to transfer from austudy[1] to newstart[2], which provide the same payment rate, but significantly different benefits. for example student's on austudy are not eligible for rent relief, have to apply for a health care card[3] every three months (because it is an education dept payment, not social security dept payment). student's can earn more before it impacts on their benefit, but they have to to make up for their exclusion from some of the automatic benefits available to newstart recipients. newstart recipients, however, must show evidence of looking for work. every fortnight.

the newstart system is designed for low income jobs. you have to take whatever work is offered to you, or your benefit can be cut off for months. which can make it awfully hard to eat.

for those who are economic rationalists, or neocons, this sounds reasonable. you shouldn't suck off the teat of taxation if you could be a taxpayer. we have some awfully overqualified cleaners in australia. it does seem a waste to have provided tens of thousands of dollars of tertiary education[4] to a person then insist that they should work as a cleaner, when with some assistance they could have been an analyst in a well paying job. or a lawyer.

meanwhile, the madness continues regarding my application for the disability support pension[5] (aka dsp). i have provided my diagnosis[6] along with duplicated details on a fistful of forms. now i have to get a form filled out by a doctor who isn't qualified to diagnose my 'condition' but does have a provider number so that my form can be processed. and i'll have to put up with being diagnosed again by someone in the dept social security [who may or may not be qualified to do so, but the dept is a law unto itself]

potentially, i could be told that for social security purposes, i'm not an aspie. while for every other purpose i am. [and i'm told that auties/aspies are wierd.] with the fed govt out to cut the number of dsp recipients, this is not an unlikely scenario.

i really, really, really hope i get a positive call soon. because the alternative is hell on earth. after all, how can an articulate, highly educated lawyer (a) be autistic, and (b) be unemployed.

to get taken seriously as a person with a significant disability, i either have to overstate my case, or be imprecise in my description of my disability. just because i use the same words as 'normal' people, doesn't mean that what i'm describing is 'normal'. [i've been told that asperger's syndrome is (a) something kids have, or (b) not a 'real' disability, or that i 'don't look autistic' ... wtf?]

[1] austudy: payment for adult students people >=25yo)
[
2] newstart: payment for adults people >=25yo)
[
3] health care card: not only grants access to medical and pharmaceutical benefits, also evidence of low income.
[
4] but i forget. uni is becoming a 'user pays' thing now. just another commodity reserved for those in the market™ who can afford it. those who already benefit from it).
[
5] disability support pension dsp): payment for people who are so disabled that they cannot work for at least 2 years.
[
6] which is determinative for other government departments
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Mood:: 'angry' angry
There are 10 comments on this entry. (Reply.)
 
posted by [identity profile] travisjhall.livejournal.com at 04:35am on 18/03/2005
From what I understand of it, according to at least some definitions, Asperger's Syndrome is a developmental disorder which occurs in childhood. Thus, an adult cannot [i]have[/i] Asperger's Syndrome, but can be left "underdeveloped" by it. In other words, potentially horrible symptoms while technically not actually having the disorder.

This leaves the potential for government departments to screw around with the words and pay no attention to the actual situation. It's sort of like a guy with no arms being denied a DSP because he's not actually in the process of having his arms torn off by a combine harvester.

On another note, your mention that the government wants to cut the number of DSP recipients explains why my wife has been asked, once again, to prove that she has a disability when said disability does not appear on their short list of recognised disabilities.
maelorin: (transmetro)
posted by [personal profile] maelorin at 02:39pm on 18/03/2005
on the other hand, asperger's syndrome is related to autism - which is kinda permanent and debilitating. the vast majority of clinicians use diagnostic criteria similiar to (if not actually) the who's icd-10 or apa dsm-iv-tr.

certainly us govt authorities use them, and consider asperger's syndrome to be both real and lifelong. the nih has this to say about asperger adults:
"With effective treatment, children with AS can learn to cope with their disabilities, but they may still find social situations and personal relationships challenging. Many adults with AS are able to work successfully in mainstream jobs, although they may continue to need encouragement and moral support to maintain an independent life."

meeting the department's rep could be interesting. i haven't seen the govt's list, but other aspies are on the dsp. [you have me curious about your wife's disability now]
 
posted by [identity profile] travisjhall.livejournal.com at 05:22am on 19/03/2005
In case it didn't come through, I didn't mean to imply that adults can't have AS. What I described is a set of beliefs about AS which I have encountered. My own attitude is that definitions of a lot of things vary, but that differing definitions of AS really only affect the label that is attached to a person's condition, and have nothing to do with what that person experiences.

Also, I know there is a pretty wide range of degrees to which AS can affect people. There are people who have suffered AS all their lives until eventually it is diagnosed well into their adulthoods, and people think they are a bit strange but otherwise they get by just fine (including being able to work full-time without great difficulty). And there are others for whom AS is crippling. As far as disability pension support is concerned, AS is really a bit like asthma... Many asthmatics get a little wheezy every now and then, while a few are so bad they can't walk down their front path, so having asthma shouldn't qualify you for DSP unless you further specify the effects of your asthma.

But the effects of asthma are a lot easier to describe, and for a non-sufferer to understand, than the effects of AS.

So essentially, I think the government departments need to work harder at understanding what is really going on with AS, and not try to just fit people into neat little boxes.

As for my wife, she has severe sleep phase cycle disorder. Essentially, she sleeps at the wrong time of day. She comes to bed at about the time I get up to go to work, and gets up at about the time I get home. In theory, I suppose she could work nights, except I'm not sure employers are even allowed to roster people on permanent night shift.

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posted by [personal profile] maelorin at 11:29am on 20/03/2005
i have come across similar beliefs, so i have found it useful to have a potted response ... sorry if it appeared as though i was confused about your position - i figured you were not a fan of the 'belief' that as is not 'a real disability'&trade.

even 'mild' as can have a profound impact on aspects of life that most people take for granted. often in ways that are hard to predict. or describe. compared with asthma, which can be diagnosed by physical tests, as diagnosis is very subjective (whatever the criteria used). this makes it easy to disparage the tests and the results.

neat boxes makes people's jobs easier. but i've never been a fan of them coz it's the people that fall just outside the neat boxes who wear the costs - particularly in terms of personal costs. govt depts need more flexible mechanisms for assessing and addressing people's real needs. the current model of what a disability is and how they affect people's lives is a significant stumbling block.

i don't know much about the details of employment law - though if i get one of the jobs i'm waiting to hear about, i'll be much better informed within a few weeks. [anti-discrimination law might have some effect - has specific provisions for discrimination in employment.]
 
posted by [identity profile] reverancepavane.livejournal.com at 05:05am on 18/03/2005
I particularly enjoyed being told to go on DSP by Centrelink and then having my application rejected because I can work full time (for about five
days and then I collapse for seven weeks in utter pain and exhaustion). I would rather have put the time wasted on bureaucracy to other pursuits.

At least the government medical was fine. The doctor, who wasn't a rheumatologist, took one look at my list of medications and said "You are one sick person." And he had only just met me, too (some people are great judges of charcter). <grin> We then spent the next ten minutes discussing his memories of life at Uni and how he almost failed physics...

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posted by [personal profile] maelorin at 02:36pm on 18/03/2005
lol ;)

[i'd rather fix the bureaucracy's rules so that people who need access to assistance can get it without having to fit into neat (and discriminatory) boxes. but i will wake up now.]

apparently it is ok to discriminate on the basis of disability, so long as you can point to a table and say that someone is "not disabled enough" ... i've had a look at schedule 1b of the social security act. lovely stuff. i might be assessed as anything from zero to forty points.

i'm grateful for not having the kind of physical difficulties and pain you have to deal with. the 'invisibility' of my 'condition' has it's own specialness.

in the wee hours, when i'm almost asleep, i find myself dreaming about conversations with the govt assessor: having to justify my claim to a 'disability' to some cynical social worker ...
 
posted by [identity profile] groozy-del.livejournal.com at 11:56am on 18/03/2005
Actually Newstart you can get when you turn 21, it's from then to older.
maelorin: (transmetro)
posted by [personal profile] maelorin at 02:21pm on 18/03/2005
yeah, i realised that today when i went in to talk to one of the hands™ at the seelink counter.

i have an interview now for not having a job <shakes head>
 
posted by [identity profile] enkorvaks.livejournal.com at 12:29pm on 18/03/2005
Of course you don't look autistic. You can interact with people. Autistic people all sit in the corner, rock back and forward, and mutter incomprehensible things under their breath. Everybody knows that.

Personally, I blame Hollywood. It's not their fault, I just like blaming them for things.

I do, however, agree that Centrelink is a joke, and someone was fired before they could reveal it. Kind of like the Liberal party, really. No one has got that one yet.
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posted by [personal profile] maelorin at 02:41pm on 18/03/2005
Autistic people all sit in the corner, rock back and forward, and mutter incomprehensible things under their breath. Everybody knows that.

yeah. i stand in the middle of the room and babble incomprehensible things at full volume <grin>
[seriously though, there have been more than a few moments when i've nearly done exactly that. takes a lot of self control to pull out. i've had a fair bit of practice ...]

i blame hollywood too. i spent too much time there in my youth.

as jokes go, it's hard to laugh when the joke's in control of whether you eat or not. <mutters something about wanting rob, job, bob ...>

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